I can't believe we have been in the hospital for 76 days and Anthony is really doing so well.
We are headed home tomorrow for the 2nd time and we plan on staying out.He has an appointment on Monday morning at clinic.He will have 2-3 appointments a week for awhile.
We are hoping that after the Week of studies and etc that Anthony will be able to go back to Dr.Thomson at Children's Hospital very close to his Day 100 mark.
His GVHD of the skin is doing good and we aren't sure about the GVHD of the Gut but it all seems stable.
Please Pray
Anthony's cells start growing
That Anthony will start eating more and more by mouth.
That his magnesium will stabilize so he won't need IV or will be able to take by mouth.
Pray for John and I as we are now responsible for getting up and doing all his medicines.Pray for rest for us all
Please pray for all the HLH babies in hospitals around the world..There are so many and through this journey we have met so many.Pray that someone will find a cure for this disease.
We know we still have a long road but this is what we chose 14 months ago with Anthony and we wouldn't change a day or minute of it.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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