Anthony had clinic today and all was good except for his Liver tests...it is up to 600 which is almost double of what it was 2 weeks ago.So the doctors are thinking of 3 things it could be 1. HLH is back but very doubtful due to he was HLH free back in October,2. GVHD of his Liver 3. it could be his liver acting out due to all his medicines he is on and all the new GVHD meds he is on.
So we ask for special prayer for Anthony this coming week that his Liver will calm down or we will be going in for a liver Biopsy and that means a couple days in the hospital.
He really is doing great other than his liver functions.
We started the Potassium on Sunday and as of today is doing ok and no Diarrhea so far.
We will try the magnesium in about a month if all goes well with the potassium.
Please pray that
Anthony's liver will calm down and we don't have a overnight for a biopsy soon and that his #'s come down by next Wednesday.
Pray that he will be able to still take his potassium and be able to handle it.This is one more step to getting his PICC line out.Which would be ideal for no infections and less hospital stays.
Pray for him to just stay healthy.He is blossoming and doing so great out of the hospital.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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