Anthony is just kinda hanging out..We are trying his feeds again to see if he can handle them..If he isn't able to start handling them by the beginning of next week he will be put on a very strong GVHD medicine ,there are many draw backs to going on this medicine and we will defiantly be home and not able to do anything this summer/fall.It would be very dangerous for us to take him out if he goes on this new medicine.
When I left him tonight with John he had taken about 10 Oz of milk so far with a little bit of vomiting.
Please pray that Anthony will be able to handle his milk.I am a little scared to start a new medicine but if this will get Anthony's GVHD under control we are willing to try it.
Pray his Beclomethosone will start kicking in .
We are so thankful that the doctors have let us take walks outside and get Anthony out of his room.He seems to enjoy getting out of his room.
Pray the Flagyl will work and get rid of the C-diff so he can see all his friends on the floor.He misses the interaction of the nurses and all the kids on the floor.
Pray for Sleep for Anthony..He actually slept last night.
Pray his PIV's will stay in longer than 2 days..They are running out of places to put a New Line.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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