So it seems we will be here for who knows how long...And personally I am starting to hate this hospital....
Anthony is doing good on his feeds.For some reason the doctors think that he has Chronic C-Diff and are treating that way and are keeping him on antibiotics that he may not even need.This is very frustrating for me and I am ready to go home.
He is getting weekly IVIG while we are here.Which looks like we may get to go home by the end of Summer...
His electrolytes are out of whack but then again they are giving him Potassium that makes him stool 10-15 times a day.But then again I have told the BMT Team this for the last 10 months ...I don't know why they wont listen to me..
Please pray Anthony will get some sleep and that he will start feeling better soon.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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