Not much has changed except Anthony is more and more agitated and i has been very hard to keep him sedated.We have had a great nurse the last 2 days and she said if we weren't here helping that he would probably need getting 1 on 1 care with a nurse to keep him safe from bumping his head and pulling his leads,lines and NG tube out.They have put him on a Dilaudid drip and the rate has gone up in the last 3 hours and he keeps getting bolus of dilaudid and ativan and nothing is working.He is still getting chlor hydrate but he can only have that every 6 hours.
There are still no decisions on his Clots and how to treat them.His heparin level are finally therapeutic levels and the BMT doctors are hoping they will take care of themselves.The ICU doctors are not even close to thinking about this.The BMT Doctors are putting in a
referral for the Hematology doctors to come and finally take a look at Anthony and see what they can do to help our sweet baby.
Please pray for Anthony's sedation and keeping him comfortable.
Pray for the hem Doctors to come today.We need answers NOW not another day or two.
Keep Praying I keep asking how much can his little body take.He is a very strong and feisty little guy but he is tired and I know he just wants to feel better and we want our sweet baby back with us.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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