Today I got to spend the day with Anthony..It was fun and he is playful but he is still puffing up and then going down.It is part of his clots but it still is very scary for us.
The AC finally started working this afternoon so it is alot cooler in his room...
I talked to the doctors today and they going to go up very slowly on his feeds,take him off his dilaudid slowly.He is also on IV antibiotics so we will probably be in the hospital for 3 weeks.
Anthony got to see his big brothers today and it was good for all 3 of them to see each other..We could tell they missed each other.
Please pray for the puffiness to go down on Anthony.
Pray that he will tolerate his feeds.
Pray that he doesn't go through withdrawals as he is being taken off the dilaudid.
Pray for us to have peace for our family.