Today I got to spend the day with Anthony..It was fun and he is playful but he is still puffing up and then going down.It is part of his clots but it still is very scary for us.
The AC finally started working this afternoon so it is alot cooler in his room...
I talked to the doctors today and they going to go up very slowly on his feeds,take him off his dilaudid slowly.He is also on IV antibiotics so we will probably be in the hospital for 3 weeks.
Anthony got to see his big brothers today and it was good for all 3 of them to see each other..We could tell they missed each other.
Please pray for the puffiness to go down on Anthony.
Pray that he will tolerate his feeds.
Pray that he doesn't go through withdrawals as he is being taken off the dilaudid.
Pray for us to have peace for our family.
Rhonda
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Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3:5-6
About Anthony
Anthony is our 2 year old wonder! In June of 2008, Rhonda found out about a 4 month old baby who had HLH, which is a rare immunity Disease the only way that doctors know how to cure HLH is to get a bone marrow Transplant . When he flew over from his birth town the doctors had no idea what was going on with this little baby, we are told that there were many times this bright eyed wonder would not make it, but with God's protection he made it. when we met Anthony, we fell in love with and soon he was our foster Son/Brother. After many months we learned that his birth mom was going to allow us to adopt him, we are forever thankful for her, and are in contact with Anthony's birth family. Finally we crammed paperwork that usually takes 6 months to process into 6 weeks, he was adopted May 14, 2009. Anthony is currently in the hospital and is having his Bone Marrow Transplant on July 23,2009.
We Thank you for visiting his site and praying for our Gift from God.
We Thank you for visiting his site and praying for our Gift from God.
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